Understanding the role of palliative care for people with advanced dementia
Author:
BPAC, 2020 (NZ)
Description:
Advanced dementia is a terminal condition for which palliative care is appropriate, however, knowing when to initiate this process can be challenging. Clinical indicators such as recurrent aspiration pneumonia, recurrent fevers and eating difficulties accompanied by significant weight loss, can be useful for predicting life expectancy, although there is often variability. Therefore, focusing on the person’s goals of care and quality of life, rather than life expectancy (i.e. quantity of life) should guide when a palliative approach be considered.
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New Zealand Te Ara Whakapiri Principles and Guidance for the Last Days of Life and Te Ara Whakapiri: Toolkit 
Author:
Ministry of Health, 2017 (NZ)
Description:
The New Zealand Te Ara Whakapiri Principles and Guidance for the Last Days of Life framework is intended only for the final days of life and recommends a whole person and whanau approach to dying (1st Ed. 2015, 2nd Ed .2017). Te Ara Whakapiri takes the place of the Liverpool Care Pathway for the Dying (LCP) which was withdrawn from use in 2013. The accompanying Te Ara Whakapiri: Toolkit is a set of checklists, flowcharts, tools and patient resources to be used for individual patients at the end of life. Te Ara Whakapiri does not specifically focus on end of life care for people with dementia. 
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The palliative care handbook
Author:
 MacLeod, R. and Macfarlane, S., 2019.  Hospice New Zealand (NZ)
Description:
This book is a set of guidelines for the alleviation of symptoms commonly encountered in palliative care. This 2019 edition has been revised and adapted to emphasise the care of people with dementia. 
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Planning for Palliative Dementia Care Resource Guide
Author:
Lenore de la Perrelle, Sandra Obst and Anne Heard, Dementia Learning and Development Unit, ACH Group, 2009 (Australia) 
Description:
This resource guide provides guidance for professionals including care workers, nurses, and community care coordinators in the planning for palliative care for people with dementia and their families, with a particular focus on supporting people to remain living at home throughout their life. 
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Essential conversations: Talking about death and dying 
Author:
Alzheimer Scotland (UK) 
Description:
A training video resource to help staff enhance their skills and confidence in supporting people with dementia and/or their families to discuss end of life care. A series of short video clips telling a story are available online with discussion questions.
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Talking About Dementia and Dying: A Discussion Tool for Residential Aged Care Facility Staff 
Author:
C Stirling, S Andrews, F McInerney,  C Toye, M Ashby,  and A Robinson, Wicking Dementia Research and Education Centre, 2011   (Australia)
Description:
This discussion tool deals with the issue of dying from dementia in a residential aged care facility. It is a resource to help people working in facilities to openly communicate with people with dementia and their families and friends about death and dying. Talking about dying is often difficult and this tool provides guidance for those who would like to improve their skills. 
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Palliative care and dementia 
Author:
Deborah Parker, Joanne Lewis, Kelly Gourlay, and Australia’s Dementia Advisory Committee for Dementia Australia, 2018 (Australia)
Description:
This discussion paper provides guidance for health professionals on palliative and end-of-life care for people with dementia and those who support them.
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Dementia gateway what the research says: End of life care 
Author:
Social Care Institute for Excellence (SCIE), 2013 (UK)  
Description:
This brief research summary provides an easy-to-read overview of key messages from the research on end of life care for people with dementia.  
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End of life care for people with dementia living in care homes
Author:
Social Care Institute for Excellence (SCIE), 2012 (UK)  
Description:
This research briefing looks at this issue from a range of perspectives, including people with dementia, family carers and care home staff, and found that more research and support is needed in this area. The full document is free to download, however you will need a free MySCIE account 
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Dementia Care Practice Recommendations for Assisted Living Residences and Nursing Homes – Phase 3 End-of-Life Care 
Author:
Jane Tilly, Peter Reed, Elizabeth Gould, and Abel Fok,  2017, for Alzheimers Association (US)
Description:
A person-centred approach to dementia care underlies these end-of-life care practice recommendations from the American Alzheimer’s Association. These recommendations for end-of-life care cover communication and decision-making strategies, assessment and care of physical and behavioural issues, psychosocial and spiritual support of residents and family, staff training and acknowledgment of resident death.  
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Advanced Dementia
Author:
CareSearch Palliative Care Knowledge Network, 2020 (Au)
Description:
A 2020 clinical update including discussion of the higher care needs and the symptoms of people living with advanced dementia at the end of life.  
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Palliative care and dementia
Author:
Palliative Care Bridge (Au)
Description:
The Palliative Care bridge offers two short video interviews with Dr Elspeth Correy (Palliative Medicine Specialist). One is a general overview, and the other discusses clinical issues and a decision making framework. 
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Three tools to help support end-of-life care for aged care residents living with dementia mate wareware 
Author:
The Dementia End-of-life project, NZ Dementia Foundation, 2023 (NZ)
Description:
The project identified three existing evidence-based tools that, when used routinely, can help address these challenges and support high-quality, person-centred end-of-life and palliative care for our residents living with dementia. In short, three tools that every team supporting residents in aged residential care should know about! Talk: Shared goals of care conversations. Teamwork: Multi-service team meetings. Te Are Whakapiri: Guidance for last days of life. The hub offers videos and resource booklets along with links to other useful resources
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