Funding: Tahua
Dementia Canterbury in Collaboration With Purapura Whetu Trust
Organisational Background
Dementia Canterbury is a long-standing not-for-profit organisation, supported by the people and hapori of Canterbury and the West Coast.
Dementia Canterbury’s catchment area covers all of Canterbury, including the Ashburton region, North Canterbury, Kaikoura, and the West Coast.
Dementia Canterbury exists to support people and their whānau to continue to live fulfilling lives following a dementia mate wareware diagnosis.
The organisation provides free, community-based education, activities, and specialised services across the Waitaha and Te Tai Poutini regions. The organisation also raises awareness about dementia mate wareware, encourages local people to seek diagnosis and breaks down barriers and stigma associated with the neurological condition.
Post Diagnostic Support and Navigation Services
Dementia Canterbury will deliver the co-designed mate wareware Tupaia (Navigators) service in partnership with Purapura Whetu. It includes a wide range of programmes for whānau affected by mate wareware.
The service aims to enable access to diagnostic and support services, as well as kaupapa Māori programmes specifically designed to support people with mate wareware and their whānau to live well in the community.
Services will include: brain health education; cultural support to access a diagnosis; information and brokerage to access needs assessment and service coordination; ongoing connection to primary health care support and advocacy when needed; education programmes designed to support living well; social and activity programmes designed to encourage positive and familiar history, connections, activities and experiences; delivery of Cognitive Stimulation Therapy; and, access to clinical expertise from a Dementia Advisor.
The services may be delivered in the person’s whare, on a marae, at Purapura Whetu, at Dementia Canterbury, in the community or in other familiar environments
More Information:
Manaaki Ora Trust
Organisational Background
Manaaki Ora Trust was formed in 2012 from the integration of two established and successful health groups: Tipu Ora and Te Utuhina Manaakitanga.
Manaaki Ora Trust delivers a wide range of primary health, social, and education services for people living in the Rotorua region, utilising Te Arawa tikanga and kaupapa Māori models of health practice.
They focus on the health and wellbeing needs of tamariki and whānau, pakeke, kaumātua and rangatahi, providing an integrated approach to service delivery for all ages. This means clients can receive a continuum of care according to their needs.
Post Diagnostic Support and Navigation Services
Manaaki Ora will deliver a service called Hei Tau Te Mauri, which is an extension of its Tiaki whānau model of care that addresses the health and wellbeing needs of whānau. It incorporates a kaupapa Māori, holistic approach to hauora.
The service will be delivered by 2.0 FTE kaitiaki who will facilitate initial needs assessments, kainga visits, ongoing support and care, group sessions and referral pathways, all while incorporating kaupapa Māori principles and values.
Hei Tau Te Mauri will be a predominantly mobile service, designed to provide support to tangata mate wareware in their homes, or any other location where they feel comfortable.
Services will be delivered in the following areas across the Rotorua districts: Ngongotahā, Mourea, Hamurana, Rotoma, Rotoiti, Mamaku, Murupara and Reporoa.
More Information:
Te Puna Ora o Mataatua Charitable Trust (TPOOM)
Organisational Background
TPOOM was established in 1991 by iwi across the Mataatua rohe. They are a non-profit charitable organisation based in Whakatāne, covering the Mataatua/Eastern Bay of Plenty region.
TPOOM provide a range of integrated health, medical, social and employment services. They deliver a whānau ora model of care that provides an all-inclusive delivery of services through multiple forms of engagement.
Post Diagnostic Support and Navigation Services
TPOOM will deliver the Rehua Ārahi Mate Wareware service in partnership with local hapū and marae, focusing on supporting, educating, and empowering whānau and their loved ones who have an onset or early stages of dementia mate wareware.
Two FTE Kaiārahi Ārahi Mate Wareware will support people living with dementia mate wareware and their whānau to: co-design care plans for whānau, co-ordinate services and resources, support access to registered nurses for assessments, specialist care, home care and advocacy, co-design an information campaign for whānau and the public and help people get access to the funded services Rehua Ārahi Mate Wareware provides.
This service will be delivered across the following areas: Whakatāne, Ōhope, Coastlands, Poroporo, Kawerau, Matatā, Edgecumbe, Awakeri, Te Teko, Murupura, Ruatahuna, Waiohau, Galatea, Ōpōtiki, Kutarere, Ruatāhuna, Waimana, Taneatua, Ruatoki, Tauranga and the East Coast.
More Information:
Aotearoa Tongan Health Workers Association Incorporated (Ākiheuho)
Organisational Background
Aotearoa Tongan Health Workers’ Association Incorporated (‘Ākiheuho) was established in 2005 and is known as ‘Ākiheuho, within the community. They were formed in response to the rising unmet health needs within the Tongan community.
Their vision is to have a healthy and prosperous Tongan and Pacific community in New Zealand and abroad.
Post Diagnostic Support and Navigation Services
The dementia service will be known as the Pacific Dementia Māngalo Service.
Ākiheuho will deliver fāmili-focused post-diagnostic supports and navigation services underpinned by the Ūloa Tongan cultural framework. Services will be an ethnic specific, fāmili-centred model that emphasises the role of the kāinga and Tongan values in care practice (ie, love, care, kindness, mutual respect, sharing, cooperating and fulfilment of mutual obligations, humility, generosity, loyalty, and commitment).
This initiative will ensure services are continuous and flexible so that it can adapt to the changing needs of the person with Māngalo (Tongan concept of Dementia) and their fāmili.
Two full-time experienced Māngalo Navigators who speak Tongan or other Pacific languages will be employed to provide non-clinical navigator services in a non-intrusive approach in homes or anywhere that is comfortable for the person with Māngalo and their fāmili.
Tongan clinical specialists will deliver workshops and activities each month. Other specialists will be brought in as needed. The aim of the workshops and activities is to empower the person living with Māngalo, their carers and fāmili.
Hosted awareness programmes by clinicians to improve health literacy and symptom awareness to increase diagnosis. The awareness programme will include radio and community presentations on how to recognise the signs of Māngalo and what can be done to slow disease progression.
Deliver workshops to build capacity to provide care for people with dementia and long-term strategies to family carers and caregivers.
More Information:
Te Hau Ora o Ngāpuhi
Organisational Background
Te Hau Ora o Ngāpuhi was established in 2015 and leads the health strategy for Ngāpuhi whānau, hapū and hāpori living within Te Whare O Ngāpuhi.
Located in the main centre of Kaikohe, Te Hau Ora o Ngāpuhi delivers programmes that help achieve optimal outcomes for whānau.
Te Hau Ora o Ngāpuhi serve whānau within the Te Whare Tapu o Ngāpuhi iwi boundaries, the middle Far North from South Hokianga through to Mangakāhia, across the Bay of Islands and down to the South-Western Whangārei region.
The strategic direction for Te Hau Ora o Ngāpuhi is aligned with the Rūnanga’s vision, mission statement, Whanāu Ora Strategy, and the desire for safe and healthy communities where whānau thrive.
Te Hau Ora o Ngāpuhi vision is “Kia tu tika te whare tapu o Ngapuhi” “That the sacred house of Ngapuhi will stand strong”.
Post Diagnostic Support and Navigation Services
Te Hau Ora o Ngāpuhi will deliver post-diagnostic supports and navigation services underpinned by four principles: whānau-centred, sustainable, innovative, and culturally safe.
The supports and services are designed for Māori by Māori and in partnership with local partners across the Te Tai Tokerau rohe.
A team will be created to offer tāngata mate wareware, their whānau, and carers the following supports and services. Te Hau Ora O Ngāpuhi will:
Establish and coordinate a range of appropriate services for tāngata mate wareware, their whānau, and carers in non-traditional health care settings, including clinical support, appropriate screening, diagnostic assessments, and community education.
Provide navigation services to coordinate and support access to services that help tāngata mate wareware, their whānau, and carers understand the health literacy of available best management options for mate wareware.
Ensure appropriate educational resources are available for tāngata mate wareware, their whānau and carers.
Employ a lead and a nurse, supervising a team of kaimahi, working conjointly to support tāngata mate wareware, their whānau and carers to identify their needs and support people to access relevant health-focused activities.
Build and maintain relationships with groups and providers across the community to ensure tāngata mate wareware, their whānau and carers receive the support and resources they need and achieve whānau ora outcomes and holistic wellbeing.
Work with whānau to develop their capacity to maintain healthy lifestyles and, where appropriate, support behaviour change to improve their health and wellbeing.
Provide access to cognitive stimulation therapy and other evidence-based interventions to maximise function for tāngata mate wareware.
Work collaboratively with specialist dementia and Alzheimer’s NGOs across the community/region to promote best practices, integrated care, and improved health outcomes for tāngata mate wareware, their whānau, and carers.
Promote Dementia Awareness Month across the community and support with local activities.
Provide dementia mate wareware information that is freely available, in accessible formats and available in Te Reo Māori.
Create a digital wallet for tāngata mate wareware, their whānau and carers so they are aware of local services and programmes
More Information:
www.tehauoraongapuhi.org/
Contact Tia Ashy, CEO, Te Hau Ora o Ngāpuhi
tia.ashby@thoon.org.nz
Presbyterian Support Upper South Island (PSUSI)
Organisational Background
Presbyterian Support has been providing social services in the Upper South Island for over 100 years.
Their vision is for a compassionate and inclusive society, and their mission is to support children, young people, whānau/families, and older people to be safe, strong and connected.
Presbyterian support provides a range of services for tamariki, whānau, young people and kaumātua to ensure wrap-around supports are available for all ages.
Respite Care Services
The Presbyterian Support Upper South Island HomeShare Day Programme will be delivered through a collaboration of 12 agencies across Te Waipounamu. The collaboration across Te Waipounamu will develop a dementia mate wareware HomeShare day activity programme, providing respite care for persons with dementia mate wareware.
Services will be delivered across 17 rural and regional localities across Te Waipounamu. These include Otago, South Canterbury, Canterbury, Marlborough, Nelson/Tasman, and West Coast.
The respite services in 17 locations across Te Waipounamu will deliver fun activities aligned with service users’ interests, provide opportunities to socialise, and help reduce stress for whanau/caregivers.
Programmes will be delivered in private homes/community venues, with a maximum of 4 attendees per day. Therefore, each location in the trial can focus on the needs of differing groups of people. Across several locations, the needs of Māori, young-onset (under 65 years) people, and those living rurally with dementia mate wareware will be met.
A typical day in the dementia mate wareware HomeShare programme will involve:
– The delivery of appropriate recreational, diversional, and social activities, according to the interests and priorities of the participants.
– Fun and socialisation.
– A shared meal
– Assistance with transport to and from the dementia mate wareware HomeShare venue will be provided if required.
More Information:
Dementia Hawke’s Bay in Collaboration With Kahungunu Executive ki te Wairoa Charitable Trust
Organisational Background
Dementia Hawkes Bay is a charitable trust that focuses on the development and delivery of quality services for people with a diagnosis of mate wareware and their whānau in the Hawke’s Bay region.
They offer unique services that support people to function in their own homes and within the community, from the point of diagnosis through their dementia journey.
Kahungunu Executive ki te Wairoa Charitable Trust is the only Māori Health Provider in Wairoa, delivering a range of health, mental health, social and housing services to the Wairoa community and the surrounding rural areas.
Their vision is for the Wairoa whānau to be healthy and well, and their mission is to help whānau achieve their goals and aspirations.
Respite Care Services
Dementia Hawke’s Bay Charitable Trust, in collaboration with Kahungunu Executive ki te Wairoa Charitable Trust, will provide respite care services via the Kaupapa Māori Active Day Programme based in the Wairoa community.
The Kaupapa Māori Active Day Programme will deliver cognitive stimulation, physical activity, and socialisation to promote brain health. A typical day will go from 9am to 3pm.
The Kaupapa Māori Active Day Programme will be delivered in tandem with the Ageing Well Programme ‘Te Rangi Atua’ for kaumātua.
More Information:
Dementia Canterbury in Collaboration With Purapura Whetu Trust
Organisational Background
Dementia Canterbury is a long-standing not-for-profit organisation, supported by the people and hapori of Canterbury and the West Coast.
Dementia Canterbury’s catchment area covers all of Canterbury, including the Ashburton region, North Canterbury, Kaikoura, and the West Coast.
Dementia Canterbury exists to support people and their whānau to continue to live fulfilling lives following a dementia mate wareware diagnosis.
The organisation provides free, community-based education, activities, and specialised services across the Waitaha and Te Tai Poutini regions. The organisation also raises awareness about dementia mate wareware, encourages local people to seek diagnosis and breaks down barriers and stigma associated with the neurological condition.
Post Diagnostic Support and Navigation Services
Dementia Canterbury will deliver the co-designed mate wareware Tupaia (Navigators) service in partnership with Purapura Whetu. It includes a wide range of programmes for whānau affected by mate wareware.
The service aims to enable access to diagnostic and support services, as well as kaupapa Māori programmes specifically designed to support people with mate wareware and their whānau to live well in the community.
Services will include: brain health education; cultural support to access a diagnosis; information and brokerage to access needs assessment and service coordination; ongoing connection to primary health care support and advocacy when needed; education programmes designed to support living well; social and activity programmes designed to encourage positive and familiar history, connections, activities and experiences; delivery of Cognitive Stimulation Therapy; and, access to clinical expertise from a Dementia Advisor.
The services may be delivered in the person’s whare, on a marae, at Purapura Whetu, at Dementia Canterbury, in the community or in other familiar environments
More Information:
Te Puna Ora o Mataatua Charitable Trust (TPOOM)
Organisational Background
TPOOM was established in 1991 by iwi across the Mataatua rohe. They are a non-profit charitable organisation based in Whakatāne, covering the Mataatua/Eastern Bay of Plenty region.
TPOOM provide a range of integrated health, medical, social and employment services. They deliver a whānau ora model of care that provides an all-inclusive delivery of services through multiple forms of engagement.
Post Diagnostic Support and Navigation Services
TPOOM will deliver the Rehua Ārahi Mate Wareware service in partnership with local hapū and marae, focusing on supporting, educating, and empowering whānau and their loved ones who have an onset or early stages of dementia mate wareware.
Two FTE Kaiārahi Ārahi Mate Wareware will support people living with dementia mate wareware and their whānau to: co-design care plans for whānau, co-ordinate services and resources, support access to registered nurses for assessments, specialist care, home care and advocacy, co-design an information campaign for whānau and the public and help people get access to the funded services Rehua Ārahi Mate Wareware provides.
This service will be delivered across the following areas: Whakatāne, Ōhope, Coastlands, Poroporo, Kawerau, Matatā, Edgecumbe, Awakeri, Te Teko, Murupura, Ruatahuna, Waiohau, Galatea, Ōpōtiki, Kutarere, Ruatāhuna, Waimana, Taneatua, Ruatoki, Tauranga and the East Coast.
More Information:
Te Hau Ora o Ngāpuhi
Organisational Background
Te Hau Ora o Ngāpuhi was established in 2015 and leads the health strategy for Ngāpuhi whānau, hapū and hāpori living within Te Whare O Ngāpuhi.
Located in the main centre of Kaikohe, Te Hau Ora o Ngāpuhi delivers programmes that help achieve optimal outcomes for whānau.
Te Hau Ora o Ngāpuhi serve whānau within the Te Whare Tapu o Ngāpuhi iwi boundaries, the middle Far North from South Hokianga through to Mangakāhia, across the Bay of Islands and down to the South-Western Whangārei region.
The strategic direction for Te Hau Ora o Ngāpuhi is aligned with the Rūnanga’s vision, mission statement, Whanāu Ora Strategy, and the desire for safe and healthy communities where whānau thrive.
Te Hau Ora o Ngāpuhi vision is “Kia tu tika te whare tapu o Ngapuhi” “That the sacred house of Ngapuhi will stand strong”.
Post Diagnostic Support and Navigation Services
Te Hau Ora o Ngāpuhi will deliver post-diagnostic supports and navigation services underpinned by four principles: whānau-centred, sustainable, innovative, and culturally safe.
The supports and services are designed for Māori by Māori and in partnership with local partners across the Te Tai Tokerau rohe.
A team will be created to offer tāngata mate wareware, their whānau, and carers the following supports and services. Te Hau Ora O Ngāpuhi will:
Establish and coordinate a range of appropriate services for tāngata mate wareware, their whānau, and carers in non-traditional health care settings, including clinical support, appropriate screening, diagnostic assessments, and community education.
Provide navigation services to coordinate and support access to services that help tāngata mate wareware, their whānau, and carers understand the health literacy of available best management options for mate wareware.
Ensure appropriate educational resources are available for tāngata mate wareware, their whānau and carers.
Employ a lead and a nurse, supervising a team of kaimahi, working conjointly to support tāngata mate wareware, their whānau and carers to identify their needs and support people to access relevant health-focused activities.
Build and maintain relationships with groups and providers across the community to ensure tāngata mate wareware, their whānau and carers receive the support and resources they need and achieve whānau ora outcomes and holistic wellbeing.
Work with whānau to develop their capacity to maintain healthy lifestyles and, where appropriate, support behaviour change to improve their health and wellbeing.
Provide access to cognitive stimulation therapy and other evidence-based interventions to maximise function for tāngata mate wareware.
Work collaboratively with specialist dementia and Alzheimer’s NGOs across the community/region to promote best practices, integrated care, and improved health outcomes for tāngata mate wareware, their whānau, and carers.
Promote Dementia Awareness Month across the community and support with local activities.
Provide dementia mate wareware information that is freely available, in accessible formats and available in Te Reo Māori.
Create a digital wallet for tāngata mate wareware, their whānau and carers so they are aware of local services and programmes
More Information:
www.tehauoraongapuhi.org/
Contact Tia Ashy, CEO, Te Hau Ora o Ngāpuhi
tia.ashby@thoon.org.nz
Manaaki Ora Trust
Organisational Background
Manaaki Ora Trust was formed in 2012 from the integration of two established and successful health groups: Tipu Ora and Te Utuhina Manaakitanga.
Manaaki Ora Trust delivers a wide range of primary health, social, and education services for people living in the Rotorua region, utilising Te Arawa tikanga and kaupapa Māori models of health practice.
They focus on the health and wellbeing needs of tamariki and whānau, pakeke, kaumātua and rangatahi, providing an integrated approach to service delivery for all ages. This means clients can receive a continuum of care according to their needs.
Post Diagnostic Support and Navigation Services
Manaaki Ora will deliver a service called Hei Tau Te Mauri, which is an extension of its Tiaki whānau model of care that addresses the health and wellbeing needs of whānau. It incorporates a kaupapa Māori, holistic approach to hauora.
The service will be delivered by 2.0 FTE kaitiaki who will facilitate initial needs assessments, kainga visits, ongoing support and care, group sessions and referral pathways, all while incorporating kaupapa Māori principles and values.
Hei Tau Te Mauri will be a predominantly mobile service, designed to provide support to tangata mate wareware in their homes, or any other location where they feel comfortable.
Services will be delivered in the following areas across the Rotorua districts: Ngongotahā, Mourea, Hamurana, Rotoma, Rotoiti, Mamaku, Murupara and Reporoa.
More Information:
Aotearoa Tongan Health Workers Association Incorporated (Ākiheuho)
Organisational Background
Aotearoa Tongan Health Workers’ Association Incorporated (‘Ākiheuho) was established in 2005 and is known as ‘Ākiheuho, within the community. They were formed in response to the rising unmet health needs within the Tongan community.
Their vision is to have a healthy and prosperous Tongan and Pacific community in New Zealand and abroad.
Post Diagnostic Support and Navigation Services
The dementia service will be known as the Pacific Dementia Māngalo Service.
Ākiheuho will deliver fāmili-focused post-diagnostic supports and navigation services underpinned by the Ūloa Tongan cultural framework. Services will be an ethnic specific, fāmili-centred model that emphasises the role of the kāinga and Tongan values in care practice (ie, love, care, kindness, mutual respect, sharing, cooperating and fulfilment of mutual obligations, humility, generosity, loyalty, and commitment).
This initiative will ensure services are continuous and flexible so that it can adapt to the changing needs of the person with Māngalo (Tongan concept of Dementia) and their fāmili.
Two full-time experienced Māngalo Navigators who speak Tongan or other Pacific languages will be employed to provide non-clinical navigator services in a non-intrusive approach in homes or anywhere that is comfortable for the person with Māngalo and their fāmili.
Tongan clinical specialists will deliver workshops and activities each month. Other specialists will be brought in as needed. The aim of the workshops and activities is to empower the person living with Māngalo, their carers and fāmili.
Hosted awareness programmes by clinicians to improve health literacy and symptom awareness to increase diagnosis. The awareness programme will include radio and community presentations on how to recognise the signs of Māngalo and how to slow disease progression.
Deliver workshops to build capacity to provide care for people with dementia and long-term strategies to family carers and caregivers.
More Information:
Presbyterian Support Upper South Island (PSUSI)
Organisational Background
Presbyterian Support has been providing social services in the Upper South Island for over 100 years.
Their vision is for a compassionate and inclusive society, and their mission is to support children, young people, whānau/families, and older people to be safe, strong and connected.
Presbyterian support provides a range of services for tamariki, whānau, young people and kaumātua to ensure wrap-around supports are available for all ages.
Respite Care Services
The Presbyterian Support Upper South Island HomeShare Day Programme will be delivered through a collaboration of 12 agencies across Te Waipounamu. The collaboration across Te Waipounamu will develop a dementia mate wareware HomeShare day activity programme, providing respite care for persons with dementia mate wareware.
Services will be delivered across 17 rural and regional localities across Te Waipounamu. These include Otago, South Canterbury, Canterbury, Marlborough, Nelson/Tasman, and West Coast.
The respite services in 17 locations across Te Waipounamu will deliver fun activities aligned with service users’ interests, provide opportunities to socialise, and help reduce stress for whanau/caregivers.
Programmes will be delivered in private homes/community venues, with a maximum of 4 attendees per day. Therefore, each location in the trial can focus on the needs of differing groups of people. Across several locations, the needs of Māori, young-onset (under 65 years) people, and those living rurally with dementia mate wareware will be met.
A typical day in the dementia mate wareware HomeShare programme will involve:
– The delivery of appropriate recreational, diversional, and social activities, according to the interests and priorities of the participants.
– Fun and socialisation.
– A shared meal
– Assistance with transport to and from the dementia mate wareware HomeShare venue will be provided if required.
More Information:
Dementia Hawke’s Bay in Collaboration With Kahungunu Executive ki te Wairoa Charitable Trust
Organisational Background
Dementia Hawkes Bay is a charitable trust that focuses on the development and delivery of quality services for people with a diagnosis of mate wareware and their whānau in the Hawke’s Bay region.
They offer unique services that support people to function in their own homes and within the community, from the point of diagnosis through their dementia journey.
Kahungunu Executive ki te Wairoa Charitable Trust is the only Māori Health Provider in Wairoa, delivering a range of health, mental health, social and housing services to the Wairoa community and the surrounding rural areas.
Their vision is for the Wairoa whānau to be healthy and well, and their mission is to help whānau achieve their goals and aspirations.
Respite Care Services
Dementia Hawke’s Bay Charitable Trust, in collaboration with Kahungunu Executive ki te Wairoa Charitable Trust, will provide respite care services via the Kaupapa Māori Active Day Programme based in the Wairoa community.
The Kaupapa Māori Active Day Programme will deliver cognitive stimulation, physical activity, and socialisation to promote brain health. A typical day will go from 9am to 3pm.
The Kaupapa Māori Active Day Programme will be delivered in tandem with the Ageing Well Programme ‘Te Rangi Atua’ for kaumātua.
More Information: