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Best Practice Link

Lifelong Intellectual Disability

 

Intellectual disability and dementia
Author:
Alzheimer's New Zealand (NZ)
Description:
People with intellectual disability (ID) are probably all more likely to develop dementia than others. However, there is a particularly strong link between Down syndrome and Alzheimers Disease. This fact sheet includes recognising dementia in people with intellectual disability and getting a diagnosis. 
Link
Hidden in plain sight: dementia and learning disability
Author:
Mental Health Foundation (UK)
Description:
This report highlights how people with learning disabilities have become invisible in dementia policy.
Link
Dementia and intellectual disabilities
Author:
Alzheimer's Disease International, 2003 (UK)
Description:
A fact sheet on dementia and intellectual disability including prevalence, assessment, and service implications.
Link
Caregiving, intellectual disability, and dementia: Report of the Summit Workgroup on Caregiving and Intellectual and Developmental Disabilities
Author:
T.Heller, H. Scott,  M.P. Janicki,  and Pre‐Summit Workgroup on Caregiving and Intellectual/Developmental Disabilities, 2017 (US)
Description:
A specially commissioned working group produced a report on caregiving, intellectual and developmental disabilities (IDDs), and dementia for the National Institutes of Health–located National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers. The report is summarised in this article in the journal Alzheimer's and Dementia: Translational Research and Clinical Interventions.
Link
Dementia and People with Intellectual Disabilities: Guidance on the assessment, diagnosis, interventions and support of people with intellectual disabilities who develop dementia
Author:
The British Psychological Society, 2015 (UK)
Description:
In order to help as many health and care organisations as possible to develop more supportive design for people with dementia., the King's Fund has developed a suite of dementia friendly assessment tools for evaluating the physical environment.
Link
International Summit on Intellectual Disability and Dementia 
Author:
International Summit on Intellectual Disability and Dementia , 2016 (UK)
Description:
In October 2016, an International Summit on Intellectual Disability and Dementia was held in Glasgow, Scotland with pre-recorded experiences of people with intellectual disabilities shared at the event. A series of nine practice and policy consensus statements were developed.
Link
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