Brannelly, T. (2016). Citizenship and people living with dementia: A case for the ethics of care. Dementia, 15(3), 304-314.
Type:
Essay
Description:
Three challenges to citizenship are discussed in relation to people with dementia using an ethics of care lens: (a) citizenship as a relationship between the individual and the state; (b) citizenship as a practice and (c) citizenship as identity and belonging. It is proposed that citizenship can be achieved by promoting inclusion in defining and creating policy, research and practice.
Keywords:
dementia, ethics of care, social justice, citizenship
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O’Sullivan, G. (2012). Living with dementia in New Zealand: An action research study. New Zealand Journal of Occupational Therapy, 59(1), 31. 
Type:
Research article
Description:
The aim of this study was to undertake a systematic inquiry into the question of how New Zealanders who live with dementia in the community can be supported to engage in daily activities, through action research with 11 people living with dementia and their care partners.
Keywords:
action research, experience, qualitative, activity, activities
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O'Sullivan, G., & Hocking, C. (2013). Translating action research into practice: seeking occupational justice for people with dementia. OTJR : occupation, participation and health, 33(3), 168-176.
Type:
Research article
Description:
The aim of this study was to undertake a systematic inquiry into how New Zealanders who live with dementia in the community may lack occupation, through action research with 11 people living with dementia and their care partners. 
Keywords:
action research, experience, qualitative, activity, activities
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O'Sullivan, G., Hocking, C., & Spence, D. (2014). Dementia: the need for attitudinal change. Dementia,13(4), 483-497.
Type:
Research article
Description:
This study explored the experience of living with dementia in the community in New Zealand, for 11 people living with dementia and their care partners. Data were gathered by interviews, observations, and focus group discussions. The findings reveal a conflict between living positively with dementia, and enduring the negative attitudes that typify the dominant social discourse
Keywords:
action research, experience, qualitative, attitudes
Link
O’Sullivan, G., Hocking, C., & Spence, D. (2014). Action research: Changing history for people living with dementia in New Zealand. Action Research, 12(1), 19-35
Type:
Research article
Description:
This study explored the experience of living with dementia in the community in New Zealand, for 11 people living with dementia and their care partners. Data were gathered by interviews, observations, and focus group discussions. The findings reveal a conflict between living positively with dementia, and enduring the negative attitudes that typify the dominant social discourse
Keywords:
action research, experience, qualitative, attitudes
Link
Perkins, C., Egan, R., Llewellyn, R., & Peterken, B. (2015). Still living, loving, and laughing: Spiritual life in the dementia Unit. Journal of Religion, Spirituality & Aging, 27(4), 270-287.
Type:
Research article
Description:
Semi-structured interviews, conducted with dementia unit residents, family, and staff members provided a three-way perspective on the spirituality of residents. The issues covered included: what gives meaning to life, how difficulties are coped with and hope maintained. Themes identified were: “the importance of relationships,” “the retention of identity,” and “the progression of dementia.” Provided appropriate assistance, the person with advanced dementia is able to value and engage in spiritual practices that provide ongoing meaning.
Keywords:
dementia, identity, meaning, relationships, spirituality
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Smith, E., Lamb-Yorski, R., Thompson, A., & Grootveld, C. (2019). This is our story: A qualitative research report on living with dementia. Wellington, New Zealand: Litmus.
Type:
Research report
Description:
This report tells the story of the diverse lives and experiences of 49 New Zealanders living with dementia and explores what it means to them to live well with dementia. Alzheimers NZ commissioned this report with Litmus to share these experiences – with other people living with dementia, for those supporting people with dementia, and with decision-makers.
Keywords:
qualitative, experience
Link
Smith, K., Gee, S., Sharrock, T., & Croucher, M. (2016). Developing a dementia‐friendly Christchurch: Perspectives of people with dementia. Australasian Journal on Ageing, 35(3), 188-192.
Type:
Research article
Description:
Christchurch, New Zealand has a unique opportunity to potentially rebuild as a dementia-friendly city in the wake of the 2010 and 2011 earthquakes. The present study gathered insights from people with dementia about what would make it possible for them to live better in Christchurch. Participants talked about the importance of being connected and engaged; of accommodation from service providers and others in the community and raising awareness of dementia, and attributes of the physical environment requiring consideration in the rebuild.
Keywords:
dementia; dementia-friendly communities; socialisation
Link
Smith, K. (2015). Developing a dementia‐friendly Christchurch: Perspectives of people with dementia. Christchurch, CDHB / Age Concern
Type:
Research report
Description:
The main objective of this report is to acknowledge, validate and disseminate the perspectives of people living with dementia as to what they considered might make Christchurch more supportive of people with dementia to everyone involved in the rebuilding and redevelopment of Christchurch city. The individuals concerned included people living in their own homes as well as those living in care facilities.
Keywords:
dementia; dementia-friendly communities; socialisation
Link
Smith, K., Gee, S., Sharrock, T., & Croucher, M. (2016). Developing a dementia‐friendly Christchurch: Perspectives of people with dementia. Australasian Journal on Ageing, 35(3), 188-192.
Type:
Research article
Description:
Christchurch, New Zealand has a unique opportunity to potentially rebuild as a dementia-friendly city in the wake of the 2010 and 2011 earthquakes. The present study gathered insights from people with dementia about what would make it possible for them to live better in Christchurch. Participants talked about the importance of being connected and engaged; of accommodation from service providers and others in the community and raising awareness of dementia, and attributes of the physical environment requiring consideration in the rebuild.
Keywords:
dementia; dementia-friendly communities; socialisation
Link