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Best Practice Links

Principles for research, advocacy, and policy

Improving Care Through Public Policy
Author:
Laura Thornhill and Rachel Conant (US) 
Description:
Discusses how policies can move us closer to the realisation of dementia-related goals, using US examples
Link
The Human Rights of People Living with Dementia: from Rhetoric to Reality
Author:
Dementia Alliance International, 2016 (UK)
Description:
The purpose of this guide is to say why we believe rights are so important in protecting the interests of people living with a dementia all around the world.
Link
Alzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement)
Author:
Alzheimer Europe, 2017 (UK)
Description:
This paper reflects Alzheimer Europe's position on PPI (patient and public involvement) in the context of dementia research and highlights some of the challenges and potential risks and benefits associated with such meaningful involvement. 
Link
Ensuring a human rights-based approach for people living with dementia
Author:
World Health Organisation, 2015
Description:
The acronym “PANEL” endorsed by the United Nations represents the basic principles of human rights P articipation, A ccountability, N on-discrimination, E mpowerment, L egality.
Link
Ethics of dementia research
Author:
Alzheimer Europe, 2011 
Description:
This report entitled “The Ethics of Dementia  Research” provides  a detailed  discussion of some of the main ethical issues linked to carrying out dementia research in an ethical manner. 
Link
DEEP: The UK Network of Dementia Voices
Author:
DEEP (UK)
Description:
DEEP stands for the Dementia Engagement and Empowerment Project – it is the UK network of dementia voices. DEEP consists of around 100 groups of people with dementia. The DEEP website includes a number of good practice guides for organisations including involving people living with dementia in advisory groups, writing information and websites, and consulting with people living with dementia.
 Link
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