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Best Practice Links

Supporting People Living with Advanced Dementia

 

The later stages of dementia and end of life care. A guide for people with dementia and their family/whānau 
Author:
Alzheimer’s New Zealand (NZ)
Description:
This booklet is designed to provide information for people with dementia and their families about what to expect in the last stage of dementia. It highlights some issues that may be useful to consider, including what happens as the end of life nears and after death has occurred. 
Link
Advanced dementia
Author:
Social Care Institute for Excellence, 2015 (UK)
Description:
This resource for providers of dementia care includes a summary of: advanced dementia, the experience of the individual, care-givers experience, communication, and providing support, along with a research summary. The resource can be read online, but free registration is required to download. 
Link
The later stages of dementia 
Author:
Alzheimer’s Society (UK)
Description:
While not specifically aimed at health professionals, the Alzheimer’s Society website provides a comprehensive and easy to read summary of expected symptoms and advice for anyone supporting a person in the later stages of dementia.
Link
Oxleas Advanced Dementia Service: Supporting carers and building resilience 
Author:
Lara Sonola, Veronika Thiel, Nick Goodwin, and Dennis L Kodner,  2013 (UK)
Description:
This case study looks at Oxleas Advanced Dementia Service which seeks to help patients with advanced dementia to live at home for as long as possible in the last year of life with support from family and/ or carers. The core team works with GPs, secondary care and social services to support carers in providing ongoing and palliative care. Staff respond to crises at home to prevent unnecessary hospital admissions where possible and reducing the likelihood that patients are placed in residential care. 
Link
Supporting people in the advanced stages of dementia 
Author:
Skills for Care, commissioned by UK Department of Health, 2013 (UK) 
Description:
This resource is aimed at leaders and managers working in services that are providing care and support to people in the advanced stages of dementia to guide best practice in staff knowledge and skills. While some of the case studies are UK specific, it contains useful guiding principles. 
Link
Evaluating emotional and psychological needs for people in the later stages of dementia 
Author:
 Alzheimer’s Society, 2015 (UK)
Description:
While aimed at UK assessors, this document gives a very clear structured guidance about assessing emotional and psychological needs of people living with advanced dementia.
Link
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