Māori and Pasifika

Buchanan, R. (2011). The Dementia Wing of History. Cultural Studies Review, 13(1), 1-14.
Type:
Essay, article
Description:
In this article the author draws on her family history to explore notions of Māori, and Pakeha identity in New Zealand, in the context of forgetting and remembering.
Keywords:
Maori, Māori, identity
Link
Cullum, S., Mullin, K., Zeng, I., Yates, S., Payman, V., Fisher, M., & Cheung, G. (2018). Do community‐dwelling Māori and Pacific peoples present with dementia at a younger age and at a later stage compared with NZ Europeans? International Journal of Geriatric Psychiatry, 33(8), 1098-1104.
Type:
Research article
Description:
This study examined the routinely collected clinical data from a memory assessment service in South Auckland to examine the presentation of dementia in the major NZ ethnic groups. Māori and Pacific peoples with dementia presented to an NZ memory service at a younger age than NZ Europeans, and Pacific peoples presented with more advanced dementia.
Keywords:
Pacific peoples, Pacifika, Maori, Māori, memory clinic
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Cullum, S., Varghese, C., Yates, S., Kalauta, L., Appleton, J., Knell, R., Cheung, G. (2021). Predictors of Aged Residential Care Placement in Patients Newly Diagnosed with Dementia at a New Zealand Memory Service. Journal of Long-term Care, (2021), 24–32. DOI: http://doi.org/10.31389/jltc.46
Type:
Research article
Description:
Sarah Cullum and colleagues report that Maori and Pacifica people living with dementia were less likely to enter aged residential care despite having more severe dementia and higher levels of comorbidity.
Keywords:
Maori, Māori, identity, Pasifica, Pasifika
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Dudley, M., Menzies, O., Elder, H., Nathan, L., Garrett, N., & Wilson, D. (2019). Mate wareware: Understanding dementia from a Māori perspective. The New Zealand Medical Journal, 132(1503), 66.
Type:
Research article
Description:
This study undertook kaupapa Māori research (Māori informed research) with 223 kaumātua (Māori elders) who participated in 17 focus groups across seven study regions throughout Aotearoa New Zealand and eight whānau from the Waikato region. Mate wareware (becoming forgetful and unwell) ('dementia') affects the wairua (spiritual dimension) of Māori. The findings elucidate Māori understandings of the causes of mate wareware, and the role of aroha (love, compassion) and manaakitanga (hospitality, kindness, generosity, support, caring) involved in caregiving for whānau living with mate wareware. Participants perceived cultural activities acted as protective factors that optimised a person's functioning within their whānau and community.
Keywords:
Maori, Māori, perspectives, qualitative
Link
Dyall, L. (2014). Dementia: continuation of health and ethnic inequalities in New Zealand. New Zealand Medical Journal, 127(1389), 68-81. 
Type:
Research article
Description:
For Māori and Pacific peoples in New Zealand dementia is not necessarily associated with age but is directly related to our respective histories within this country, patterns of migration and the socioeconomic determinants. Issues are discussed in relation to Māori and Pacific development, prevention, early detection, and Whānau Ora
Keywords:
Maori, Māori, Pacific peoples, Pacifika, services, health
Link
Gilmour, J. (2016). Oral health experiences of Māori with dementia and whānau perspectives-oranga waha mō ngā iwi katoa. Nursing Praxis in New Zealand, 32(1).
Type:
Research article
Description:
This paper reports a study of the oral health experiences and needs of Māori with dementia and their whānau. Age-related change is associated with oral health issues such as gum recession, risk of caries and issues with previous dental work. A diagnosis of dementia is an added factor due to care provision difficulties. A descriptive qualitative research design was used to develop an in-depth understanding of oral health issues from the perspective of the people being interviewed
Keywords:
oral health, dental, teeth, Maori, Māori, services
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Hikaka, J., Jones, R., Hughes, C. et al. (2021). Ethnic Variations in the Quality Use of Medicines in Older Adults: Māori and Non-Māori in Aotearoa New Zealand. Drugs Aging 38, 205–217. https://doi.org/10.1007/s40266-020-00828-0
Type:
Research article
Description:
Joanna Hikaka and colleagues have reviewed the available literature on ethnic variations in the quality use of medicines, including medicines utilisation and associated clinical outcomes, between Māori and non- Māori older adult populations in NZ.
Keywords:
Maori, Māori, medicine, medication
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Kēpa, M. (2019). Oldest age does not come alone: What’s the name of the day. In W. Hulko, D. Wilson, & J. Balestrery (Eds.). Indigenous Peoples and Dementia: New Understandings of Memory Loss and Memory Care. Toronto, Canada: UBC Press.
Type:
Research article
Description:
This chapter describes the Māori context of dementia, a research project that undertook a series of interviews and focus groups to answer how Māori people can humanise the care of elderly Māori, and the author’s personal experience with dementia.
Keywords:
Maori, Māori, services, care, experience, qualitative
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Ma'u, E., Cullum, S., Cheung, G., Livingston, G., & Mukadam, N. (2021). Differences in the potential for dementia prevention between major ethnic groups within one country: A cross sectional analysis of population attributable fraction of potentially modifiable risk factors in New Zealand. The Lancet Regional Health-Western Pacific, 13, 100191.
Type:
Research article
Description:
Etuini Ma'u and colleagues report on how the rate of preventable dementia risk factors varies across ethnic groups in New Zealand. The relative contribution of individual risk factors varied by ethnic group.
Keywords:
Maori, Māori, Pasifika, Asian, risk factors, prevention
Link
Martin, R., & Paki, P. (2012). Towards inclusion: The beginnings of a bicultural model of dementia care in Aotearoa New Zealand. Dementia, 11(4), 545-552..
Type:
Research article
Description:
This article describes the development of a bicultural approach to dementia care in Tai Tokerau (Northland), Aotearoa New Zealand. It emphasises the need to provide care for Māori people with dementia within the context of extended family structures in order to improve their representation in dementia services
Keywords:
Maori, Māori, services, care
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Menzies, O., Dudley, M., Garrett, N., Elder, H., Daniels, P., & Wilson, D. (2021). He Tūhononga Whaiaro: A Kaupapa Māori Approach to Mate Wareware (Dementia) and Cognitive Assessment of Older Māori. Journal of Applied Gerontology. https://doi.org/10.1177/07334648211037504

Type:
Research article
Description:
In an important new paper Oliver Menzie, Makarena Dudley and colleagues report on emergent themes that could improve the assessment of kaumātua (older Māori) referred for possible mate wareware (dementia), with examples of questions to assess these themes.
Keywords:
Maori, Māori, culture, experience, assessment, preventative factors
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Menzies, O., Garrett, N. et al. He Taonga Te Wareware: Connecting Older Māori Experiences of Wairuatanga with Mate Wareware (Dementia). J Cross Cult Gerontol (2024). https://doi.org/10.1007/s10823-023-09492-4

Type:
Research article
Description:
This study investigates the presence of wairuatanga within kaumātua lives, drawing upon 61 interviews with kaumātua to glean a Māori understanding of mate wareware and to develop a diagnostic screening tool for mate wareware.
Keywords:
Māori, culture, experience, assessment, preventative factors, wairua, mate wareware
LINK

Culturally and linguistically diverse 

Cheung, G. (2010). Characteristics of Chinese service users in an old age psychiatry service in New Zealand. Australasian Psychiatry: Bulletin of Royal Australian and New Zealand College of Psychiatrists, 18(2), 152-157
Type:
Research article
Description:
This study aimed to describe the profiles of Chinese service users in a community-based old age psychiatry service. 22 older Chinese service users at the time of analysis were compared with a sample of 22 non-Chinese service users. The higher rates of physical aggression at referral, use of Mental Health Act and inpatient treatment in the Chinese group suggest there might have been a delay in seeking care until psychiatric symptoms became unmanageable.
Keywords:
Chinese, services, service use, psychiatry
Link
Cheung, G., Appleton, K., Boyd, M., & Cullum, S. (2019). Perspectives of dementia from Asian communities living in New Zealand: A focus group of Asian health care professionals. International Journal of Geriatric Psychiatry.
Type:
Research article
Description:
The objective of this study was to explore with a focus group of 11 Asian health care professionals about public attitudes towards dementia in Asian communities in New Zealand, the stigma of dementia, and how best to develop culturally appropriate services for Asian people and families living with dementia. The findings suggest that much work is needed to destigmatise dementia in New Zealand Asian communities.
Keywords:
Chinese, Asian, health care professionals, services, attitudes, stigma
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Punchihewa, C. & Lou, M. (2013). Dementia Support for Asian Communities. Auckland, NZ: University of Auckland and Alzheimer’s Auckland
Type:
Research Report, review
Description:
This summary of barriers to dementia support use amongst Asian communities draws on a literature review and interviews with experts in the Auckland region
Keywords:
Chinese, Asian, service use
Link

Younger onset

Chaston, D. (2011). Between a rock and a hard place: Exploring the service needs of younger people with dementia. Contemporary Nurse: A Journal for the Australian Nursing Profession, 39(2), 130-139. 
Type:
Article, review
Description:
To consider the effectiveness of available services a literature review was undertaken to determine the need for age appropriate services in New Zealand for younger people with dementia. Two main themes were identified, these relate to age appropriate service provision, a single entry point into services, and a defined care pathway. 
Keywords:
younger onset, services, early onset
Link
Chaston, D. (2010). Younger adults with dementia: a strategy to promote awareness and transform perceptions. Contemporary Nurse: A Journal for the Australian Nursing Profession, 34(2), 221-229. 
Type:
Article, summary
Description:
This article describes dementia in the younger person highlighting their experiences and those of their families, along with nurses' attitudes towards and perceptions of this client group. A strategy is proposed to positively influence and enhance the attitudes of health professionals ultimately enhancing the quality of life for younger people with dementia
Keywords:
younger onset, early onset, nursing, attitudes
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Levack, W., & Thornton, K. (2017). Opportunities for a meaningful life for working-aged adults with neurological conditions living in residential aged care facilities: A review of qualitative research. British Journal of Occupational Therapy, 80(10), 608-619.
Type:
Review (New Zealand authors)
Description:
The aim of this review was to identify and synthesise findings from all published qualitative research investigating the experiences of working-aged adults with neurological conditions living in residential aged care facilities.
Keywords:
younger onset, early onset, qualitative, aged residential care, aged care
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Rimkeit, S., & McIntosh, J. (2017). Experiencing place: Younger people with dementia facing aged care. Australasian Psychiatry, 25(6), 554-561.
Type:
Research article    
Description:
There is limited understanding of how people with younger onset dementia and their care givers anticipate or experience aged residential care. This qualitative study has used semi-structured interviews to give voice to the opinions and perspectives of nine people with younger onset dementia and 11 care givers. There is a need for a familiar memory of place in an intergenerational community and home-like setting. The loss of autonomy and ensuing stagnation or even institutional internment was much feared. Appropriate exercise and purposeful occupational activities as well as emotional support were valued therapies but often lacking for this group
Keywords:
younger onset, early onset, qualitative, perspectives, aged residential care, aged care, Interpretive Phenomenological Analysis, meaningful activity, memory
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Ryan, B. Martinez, R, Adrian M. Rivera-Rodriguez, C. Curtis, M. Cheung, G. (2021). Sociodemographic and Clinical Characteristics of 1350 Patients With Young Onset Dementia, Alzheimer Disease & Associated Disorders: July-September 2021 - Volume 35 - Issue 3 - p 200-207 doi: 10.1097/WAD.0000000000000435
Type:
Research article
Description:
Bridget Ryan and colleagues used InterRAI data to compare the characteristic of people living with younger onset dementia (YOD) compared to older people with dementia. People living with YOD were more likely to be experiencing financial stress, loneliness, and other negative emotions, but were less frail and dependent.
Keywords:
YOD, younger onset dementia
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