Pacific Peoples

Cullum, S., Mullin, K., Zeng, I., Yates, S., Payman, V., Fisher, M., & Cheung, G. (2018). Do community‐dwelling Māori and Pacific peoples present with dementia at a younger age and at a later stage compared with NZ Europeans? International Journal of Geriatric Psychiatry, 33(8), 1098-1104.
Type:
Research article
Description:
This study examined the routinely collected clinical data from a memory assessment service in South Auckland to examine the presentation of dementia in the major NZ ethnic groups. Māori and Pacific peoples with dementia presented to an NZ memory service at a younger age than NZ Europeans, and Pacific peoples presented with more advanced dementia.
Keywords:
Pacific peoples, Pacifika, Maori, Māori, memory clinic
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Cullum, S., Varghese, C., Yates, S., Kalauta, L., Appleton, J., Knell, R., Cheung, G. (2021). Predictors of Aged Residential Care Placement in Patients Newly Diagnosed with Dementia at a New Zealand Memory Service. Journal of Long-term Care, (2021), 24–32. DOI: http://doi.org/10.31389/jltc.46
Type:
Research article
Description:
Sarah Cullum and colleagues report that Maori and Pacific peoples living with dementia were less likely to enter aged residential care despite having more severe dementia and higher levels of comorbidity.
Keywords:
Maori, Māori, identity, Pasifica, Pasifika
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Dyall, L. (2014). Dementia: continuation of health and ethnic inequalities in New Zealand. New Zealand Medical Journal, 127(1389), 68-81. 
Type:
Research article
Description:
For Māori and Pacific peoples in New Zealand dementia is not necessarily associated with age but is directly related to our respective histories within this country, patterns of migration and the socioeconomic determinants. Issues are discussed in relation to Māori and Pacific development, prevention, early detection, and Whānau Ora
Keywords:
Maori, Māori, Pacific peoples, Pacifika, services, health
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Fa’alau, F., Peteru, A., Fa’alili-Fidow, J., Roberts, M., & Wilson, S. (2024). Living with dementia in Aotearoa New Zealand: Samoan families’ perspectives. AlterNative: An International Journal of Indigenous Peoples, 20(1), 12-20. 
Type:
Research article
Description:
This study explores experiences and understanding of dementia from family sessions with 25 people from 10 Samoan families living with dementia. 
Keywords:
cultural understanding, dementia, family carers, Indigenous health, living with dementia, Samoan community
Link
Ma'u, E., Cullum, S., Cheung, G., Livingston, G., & Mukadam, N. (2021). Differences in the potential for dementia prevention between major ethnic groups within one country: A cross sectional analysis of population attributable fraction of potentially modifiable risk factors in New Zealand. The Lancet Regional Health-Western Pacific, 13, 100191.
Type:
Research article
Description:
Etuini Ma'u and colleagues report on how the rate of preventable dementia risk factors varies across ethnic groups in New Zealand. The relative contribution of individual risk factors varied by ethnic group.
Keywords:
Maori, Māori, Pasifika, Asian, risk factors, prevention
Link
Ma’u, E., Saeed, F., Yates, S., Oulaghan, B., Whittington, R., Coomarasamy, C., ... & Cullum, S. (2022). Do Māori and Pacific peoples living with dementia in New Zealand receive equitable long-term care compared with New Zealand Europeans?. Journal of Long-Term Care, (2022).
Type:
Research article
Description:
This study of the Counties Manukau District Health Board region found that Māori and Pacific peoples with dementia use significantly less aged residential care than Europeans, but this isn't compensated by increased home-based support services, suggesting families are providing unpaid care to fill the gap in public healthcare resources.
Keywords:
Long term care, aged residential care, cost, Māori, Pacific peoples
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Culturally and linguistically diverse 

Cheung, G. (2010). Characteristics of Chinese service users in an old age psychiatry service in New Zealand. Australasian Psychiatry: Bulletin of Royal Australian and New Zealand College of Psychiatrists, 18(2), 152-157
Type:
Research article
Description:
This study aimed to describe the profiles of Chinese service users in a community-based old age psychiatry service. 22 older Chinese service users at the time of analysis were compared with a sample of 22 non-Chinese service users. The higher rates of physical aggression at referral, use of Mental Health Act and inpatient treatment in the Chinese group suggest there might have been a delay in seeking care until psychiatric symptoms became unmanageable.
Keywords:
Chinese, services, service use, psychiatry
Link
Cheung, G., Appleton, K., Boyd, M., & Cullum, S. (2019). Perspectives of dementia from Asian communities living in New Zealand: A focus group of Asian health care professionals. International Journal of Geriatric Psychiatry.
Type:
Research article
Description:
The objective of this study was to explore with a focus group of 11 Asian health care professionals about public attitudes towards dementia in Asian communities in New Zealand, the stigma of dementia, and how best to develop culturally appropriate services for Asian people and families living with dementia. The findings suggest that much work is needed to destigmatise dementia in New Zealand Asian communities.
Keywords:
Chinese, Asian, health care professionals, services, attitudes, stigma
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Punchihewa, C. & Lou, M. (2013). Dementia Support for Asian Communities. Auckland, NZ: University of Auckland and Alzheimer’s Auckland
Type:
Research Report, review
Description:
This summary of barriers to dementia support use amongst Asian communities draws on a literature review and interviews with experts in the Auckland region
Keywords:
Chinese, Asian, service use
Link

Younger onset

Chaston, D. (2011). Between a rock and a hard place: Exploring the service needs of younger people with dementia. Contemporary Nurse: A Journal for the Australian Nursing Profession, 39(2), 130-139. 
Type:
Article, review
Description:
To consider the effectiveness of available services a literature review was undertaken to determine the need for age appropriate services in New Zealand for younger people with dementia. Two main themes were identified, these relate to age appropriate service provision, a single entry point into services, and a defined care pathway. 
Keywords:
younger onset, services, early onset
Link
Chaston, D. (2010). Younger adults with dementia: a strategy to promote awareness and transform perceptions. Contemporary Nurse: A Journal for the Australian Nursing Profession, 34(2), 221-229. 
Type:
Article, summary
Description:
This article describes dementia in the younger person highlighting their experiences and those of their families, along with nurses' attitudes towards and perceptions of this client group. A strategy is proposed to positively influence and enhance the attitudes of health professionals ultimately enhancing the quality of life for younger people with dementia
Keywords:
younger onset, early onset, nursing, attitudes
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Levack, W., & Thornton, K. (2017). Opportunities for a meaningful life for working-aged adults with neurological conditions living in residential aged care facilities: A review of qualitative research. British Journal of Occupational Therapy, 80(10), 608-619.
Type:
Review (New Zealand authors)
Description:
The aim of this review was to identify and synthesise findings from all published qualitative research investigating the experiences of working-aged adults with neurological conditions living in residential aged care facilities.
Keywords:
younger onset, early onset, qualitative, aged residential care, aged care
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Rimkeit, S., & McIntosh, J. (2017). Experiencing place: Younger people with dementia facing aged care. Australasian Psychiatry, 25(6), 554-561.
Type:
Research article    
Description:
There is limited understanding of how people with younger onset dementia and their care givers anticipate or experience aged residential care. This qualitative study has used semi-structured interviews to give voice to the opinions and perspectives of nine people with younger onset dementia and 11 care givers. There is a need for a familiar memory of place in an intergenerational community and home-like setting. The loss of autonomy and ensuing stagnation or even institutional internment was much feared. Appropriate exercise and purposeful occupational activities as well as emotional support were valued therapies but often lacking for this group
Keywords:
younger onset, early onset, qualitative, perspectives, aged residential care, aged care, Interpretive Phenomenological Analysis, meaningful activity, memory
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Ryan, B. Martinez, R, Adrian M. Rivera-Rodriguez, C. Curtis, M. Cheung, G. (2021). Sociodemographic and Clinical Characteristics of 1350 Patients With Young Onset Dementia, Alzheimer Disease & Associated Disorders: July-September 2021 - Volume 35 - Issue 3 - p 200-207 doi: 10.1097/WAD.0000000000000435
Type:
Research article
Description:
Bridget Ryan and colleagues used InterRAI data to compare the characteristic of people living with younger onset dementia (YOD) compared to older people with dementia. People living with YOD were more likely to be experiencing financial stress, loneliness, and other negative emotions, but were less frail and dependent.
Keywords:
YOD, younger onset dementia
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Sharma, S., Ilse, C., Brickell, K., Le Heron, C., Woods, K., O’Mara Baker, A., ... & Ryan, B. (2024). Determinants of Time to Diagnosis in Young-Onset Dementia. American Journal of Alzheimer's Disease & Other Dementias®, 39,1-1015333175241309525.
Type:
Research article
Description:
Shruti Sharma and colleagues have completed the first study of the diagnostic pathway of young-onset dementia in New Zealand. The average time between the onset of symptoms and diagnosis was 3.6 years
Keywords:
YOD, young onset dementia, diagnosis, younger onset dementia
LINK