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Best Practice Links

Supporting People with Younger Onset Dementia

 

Young Onset Dementia Facilitators Resource Manual
Author:
Alzheimer Society Canada
Description:
The Canadian Alzheimer Society offers a resource with advice for organisations thinking about groups specifically for people with younger onset dementia.
Link
Younger Onset Dementia
Author:
Dementia New Zealand (NZ)
Description:
This help sheet provides a brief lay summary of younger onset dementia. emphasises the importance of a correct diagnosis and some aspects of caring for someone with younger onset dementia.
Link
Younger Onset Dementia
Author:
Dementia Australia (Au)
Description:
Dementia Australia has developed the younger onset dementia hub. This provides clear information about younger onset dementia for people living with dementia and their families, and also includes a section for health professionals focusing on diagnosis.
Link
Younger Onset Dementia: A New Horizon?
Author:
Dementia Australia, 2013 (Au)
Description:
An Australian National Summit examined the issues facing individuals with younger onset dementia, determine current gaps in responses and develop recommendations for the way forward in order to improve the quality of life for people with younger onset dementia and their families. This report provides a summary of the Summit and describes the actions required to develop better responses to the needs of people with younger onset dementia, their carers and their families.
Link
In Our Own Words: Younger Onset Dementia
Author:
Dementia Australia, 2009 (NZ)
Description:
This collection of very personal stories contains insights into living with younger onset dementia.
Link
Understanding younger onset dementia: Online training
Author:
Centre for Dementia Learning (Au)
Description:
This free 3-part online course aims to increase your awareness of the unique and often complex issues involved when a young person is diagnosed with dementia. Suitable for staff providing support to people living with dementia. This course can be completed at your own pace, it takes approximately 90 minutes to complete. Registration required. You will receive a certificate of completion once you have completed all parts of the module.
Link
Younger Onset Dementia: A Review of the Literature to Inform Service Development
Author:
Janet Sansoni and colleagues, 2016 (Au)
Description:
This literature review focuses on the experience, care, and service requirements of people with younger onset dementia.
Link
Rare forms of dementia
Author:
Alzheimer Europe, 2005 (EU)
Description:
This summary includes chapters on the brain, diagnosis and care and treatment of rare forms of dementia
Link
Rare Dementia Support
Author:
University College London (UK)
Description:
The Rare Dementia Support website includes information and short films on six rarer types of dementia:  Familial Alzheimer’s disease (FAD), frontotemporal dementia (FTD), familial frontotemporal dementia (fFTD), posterior cortical atrophy (PCA), primary progressive aphasia (PPA) and Lewy body dementia (LBD). 
Link
The Many Faces of Dementia
Author:
University College London (UK)
Description:
This free 4 week online course offers insight into dementia through the stories, symptoms and science behind four less common diagnoses: familial Alzheimer's disease (FAD), behavioural variant frontotemporal dementia (bvFTD), dementia with Lewy bodies (DLB), and posterior cortical atrophy (PCA).
Link
People living with Huntington Disease:  care education videos
Author:
Huntington Study Group (UK)
Description:
The Huntington Study Group has a series of short care education videos on treating the symptoms of Huntington Disease and an online course. Note these are American resources and some information is not applicable here (e.g., laws, funding etc).
Link
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