Researchers seeking families to talk about the End of Life Care Act

By NZDF. Published on 31/1/2023

Research Study: Experiences of the End of Life Choice 2019 Act amongst families and whānau

A group of researchers at the University of Auckland and the University of Otago are interested in improving the new assisted dying service in Aotearoa New Zealand. They are looking for participants who have supported a family member who passed away since the 7th November 2021, when the End of Life Choice Act (EOLC Act) was enacted. 

To improve the new assisted dying service in Aotearoa New Zealand, we would like to invite you to participate in a research interview if you have supported a family member who passed away since the 7th November 2021, when the End of Life Choice Act (EOLC Act) was enacted. 

The family member you supported may have: 

(i) used the EOLC Act; 

or (ii) considered using the EOLC Act but ultimately did not; 

or (iii) did not use the EOLC Act. 

We sincerely acknowledge your loss and respect that your grief is still very recent. We would like to interview you at least 6 to 12 months after the death of your family member. This study will provide you with an opportunity to reflect on your journey of supporting your family member during the last part of their life. 

Participation is entirely voluntary and would involve: 

  • One 60-minute interview for non-Maori families or one 120-minute for Maori whanau (or family group interview if you wish to have your family member(s) present). 
  • Interview conducted via Zoom/MS Teams or a face-to-face interview if you are based in Auckland. 
  • The interview will be audio-recorded and transcribed. 
  • You will have the chance to review your transcript (only for individual interviews) and a study summary to ensure your views are accurately represented and that your confidentiality is preserved.

 

Please contact Dr Aida Dehkhoda at a.dehkhoda@auckland.ac.nz or on 09 923 9491 if you would like more information regarding the study's procedure, funds, and Ethics approval, have any questions, or if you might wish to participate. 

Principal Investigators: Rosemary Frey: r.frey@auckland.ac.nz and Dr Gary Cheung: g.cheung@auckland.ac.nz - The University of Auckland

 

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